Sorry to resurrect an old thread, but as my father in law is suffering from pancreatic cancer I thought I’d post here in the hope that some one may indeed be able to direct me to and ‘quality’ CBD oil that may help him as his meds just can’t keep the pain down at all. Horrible to see him Suffering so much. A good mate over in Ireland got some for his dad who had operable bowel cancer and he said it helps his dad immensely. The high street brands apparently don’t do jack. Anyone who can help I’d be eternally grateful.
My father had pancreatic cancer, in the head of the pancreas for which he recieved surgery (PRPD Pylorus Resecting Pancreatico Duodenectomy surgery with stented gastrostomy), followed by Gemcitabin treatment and he lived with a minor tumor (inoperable) in his liver. He died from vascular disease (blood cloth clogged his blood flow to parts of his bowels) 3.5 yrs after the pancreatic surgery. The tumor in his liver hardly grew, I believe it was 17 mm.
Against the pain (mostly from surgery/scars, partly because of the trouble to get adjusted with enzymes to digest his food and the bowel movements and cramps associated with that), he used CBD oil.
The best stuff was made locally in the Netherlands, the Barret variety/reform shop stuff wasn't much help. If you want me to, I can ask my mother the details.
The good ones made a BIG difference. I hope your father in law is operable and the CBD is going to help him cope.
Last edited by Bernard; 6th November 2019 at 21:11.
Thanks for all your help guys, really appreciated
Rick Simpson is the guy I watched on YouTube about all this plenty of videos on how to make your own if you can’t find decent stuff, as I said earlier in the thread it massively helped my dad with the pain caused by pancreatic cancer there are all kinds of claims about the medicinal value and it being a magical cure about which I remain sceptical but open minded however the pain relief aspect I witnessed myself and it made the world of difference for him.
Thanks, unfortunately he went through the surgery only to be told it was inoperable due to it being to close to the main veins. The consultant stated that if he even nicked the vein/artery he would bleed out in 30 seconds with no way to stop it. So 12hrs on the table to be stitched back up. So sad. To then here him come around and console the surgeon by saying “thanks for trying, don’t worry we’ve all gotta go sometimes” filled me up, I genuinely don’t cry, but that just humbled me so much.
He’s struggling now with digestion, with the Creon (enzymes) and is rarely pain free. Research led me to CDB oil. Hope this will help him.
Thanks guys, genuinely mean that, and for all those that have been through this and lost there best mate called dad, my heart goes out to you. x
#fuckcancer!
Sometimes a borderline resectable tumor can be attacked with Folfirinox. That is nasty stuff though, a mix of basically poisons to attack the tumor. After that I would say an endoscopic surgery (KU Leuven, prof. dr. Baki Topal is the best in Europe). Less trouble and revalidation than a regular Whipple.
Did the tumor grow into the arteria mesenterica superior or another bloodvessel?
So sorry to read about your situation.
My understanding is it has attached itself to that area, enough so that the surgeon couldn’t see the blood vessel, it’s also in the first couple of lymph nodes, latest PET scan showed still contained within pancreas head. He stated prior to the op that if he couldn’t remove all of the cancer he wouldn’t attempt the operation. The procedure was done over at Manchester Royal, they have a specialist HPB unit over there for the treatment of this disease, and to be fair they were absolutely fantastic. Leighton hospital on the other hand nearly killed him, hence we got him moved to manchester after escalating this. The consultant could believe his condition was so bad when he got to manchester and was confused as to why he’d been in a bed so long at Leighton with nothing being done (10 days with just pain meds as they watched his bilirubin level go of the scale and he turned bright yellow) needless to say he went straight into theatre at manchester 12hrs after being admitted, but as mentioned they missed the window of opportunity. There is a further back story to this as over a month before this we had him in A&E at Leighton, but again they missed the signs told him to take paracetamol on go home, after being told it would be 8 hours wait before he would see anyone? Oh and the ambulance crew who we called 2 weeks later, turned up and said, sorry we can’t do anything, he looks fine, if your worried take him to A&E in your car as you’ll only be taking an ambulance of the street and there really is nothing we can do for him stating “he won’t get seen any quicker if we take him you know?” Needless to say he was yet again bundled into my car at midnight, waited 4 hours then told it could be up to a 10 hour wait to be seen. He was in so much pain we took him back home, again. Was good to see the Saturday night piss heads getting seen to though whilst we sat in the waiting room.
Rant over!
He had his first consultation at the Christie’s 2 weeks back with a professor Juan Valle, the leading chap on this disease. He’s too weak for Folfirinox, and borderline for the Abraxane/ Gemcitabine combo, I Honestly think as so much time has passed, by the time we get to go back for his first treatment , he’ll be too weak for this as he’s now struggling to eat anywhere near his needed calories per day as the digestive discomfort (plus obvious tumour related pain) has ground him down.
We’ve been trying everything to get his calories up, including adding cream/cheese/FF milk etc.. just can’t get a handle on his digestion. He’s taking creon before, during and one after every meal average 4/5 per small meal.
I’m very proactive with his care, I’d say one notch back from ‘pain in the ass’ level. Prescribed meds by Doctors and chemists are a nightmare. You can’t stock pile any of the controlled drugs, they are literally when you run out you pick up another batch/bottle which is all fine until they forget to submit his prescription or the chemist forgets to order it. The BS red tape and nanny state pisses me off immensely. All this precaution due to the fact no doubt that the could either be sold on black market or taken by some smack head? The mind boggles and my father in law suffers, plus we worry we’re going to run out of X or Y.
One thing I’ve learnt is, 1, FFS don’t get ill, especially in the UK & 2, the NHS is well and truly broken.
Due to the fact We’ve been in and out of hospitals daily for the past 4 months you begin to see patterns, spot staff, processes etc. Some staff work really hard, the ones that actually care, the rest (or majority) are too busy pinned to their smartphones on instagram and Facebook to give a damn. I don’t want to rant about this too much, but think we all agree the system need funding as well as chopping off the useless hangers.
Thanks for your support guys, this is one of the toughest things me and the misses have ever been through. We'll soldier on, keep strong for him and support him in every way we can.
Cheers guys x
Nightmare situation, I'm - alas - familiar with. To be honest, the Dutch medical situation isn't so much better than it is in the UK from what I read in your post.
Belgium was quite a bit better (my father had surgery in Leuven).
Please consult the doc about enriched drinks, that contain a lot of nutritional value. It is what helped my father to gain some weight after his surgery, when the pain was worst.
Drinking is often easier than eating for people with pancreatic cancer.
When it comes to Creon I learned this from my father: unless you get constipation, you are probably not taking enough...
I am glad you are helping your father in law, the real information out there for patiënts is often hard to find for the average, older and less internet-savvy patiënt, plus they need support and help with their situation. Pancreatic cancer still has a very grim outlook and treatment is very complicated due to the location of the tumor, ease of spread to liver, growth into the mesenteric vein and artery in combination with the late stage it is usually found in. The psychological effects are often overlooked. Patiënts often need to be able to talk to people and get out of the house in order not to get into a depression. This is most often grossly missed by the medical sector, which focusses on the treatment of the patiënt.
Basically, when my father decided he didn't give a damn about the cancer but was going to have fun every day that remained, he got better fast.
The mindset really helps the body.
Thanks for this. Regarding drinks he does have these high energy protein drinks, but again think he’s fed up of them.
You’re also right regarding getting him out of the house. We need to do this, I’m going to suggest this to him today. Some fresh air will do him good. Which is kind of ironic because he’s decided to take up smoking now as he has the Fk it attitude. I couldn’t really argue with him about it as he puts up a strong case for doing it. A very bizarre scenario where all logic has gone out of the window.
Thanks again For all your replies, I’m filtering through some of the positives to him which seems to improve his wellbeing.
Chronic pain and illness including arthritis can be remedied by diet to boost the immune system; a healthy immune system requires a healthy 'personal microbiome'
Please consider viewing Professor Tim Spector's You Tube videos on the subject
https://www.youtube.com/watch?v=f-0SNJ_52H0
https://www.youtube.com/watch?v=6ZVkHB6jI4A
https://www.youtube.com/watch?v=3949Tg-knmc
https://www.youtube.com/watch?v=PEAdtGa549I
and also consider reading his book 'The Diet Myth'
https://www.amazon.co.uk/Diet-Myth-R...c=1&th=1&psc=1
Also investigate Kefir and Kombucha live culture preparations ... which are in effect multi-culture types of yogurt ... but don't overdo these and take adequate prebiotics with them to gain maximum benefit
dunk
"Well they would say that ... wouldn't they!"
Another thing worth looking into is low-carb diets. I won't try to give specific details because it's outside my expertise, so I'll just say anyone interested should do their own research, but I will recommend the book The Art and Science of Low Carbohydrate Living by Volek & Phinney as probably the best starting point. It mentions the topic but it's something I've only skimmed over: there is apparently a known connection between carbohydrates and inflammation. It's something I have personally noticed if I switch between a ketogenic and "normal" diet: I get a lot less knee pain while on low carb. I plan to do further research into this myself, but I haven't had the time to look into it thoroughly yet.
There are even specifically anti-inflammatory diets, although I would caution against reading too much into the "evidence" given in articles like that one (which was the first I happened to stumble upon, as I said not an expert on this just pointing it out). I would instead recommend the aforementioned Volek & Phinney, because it gives a good overview of the science to date, from which to draw conclusions about any dietary modifications. That, I think, is always better than these magic bullet diets, often based on very thin science such as individual studies with small sample sizes.
Personally I would not be surprised at all if the recent trend towards gluten-free dieting is actually just about cutting down on refined grain products like bread and pasta generally, which then reduces this carbohydrate inflammation response making people feel better, even though the vast majority probably aren't gluten intolerant in the slightest. I think there's a lot to be said for cutting or significantly reducing bread, pasta and probably rice, even without going full-on keto.
I would also agree that there's a lot of evidence that the gut biome is extremely important. However, to my knowledge there isn't a lot of concrete evidence about in what way it's important, or that anything like prebiotics/probiotics actually make any difference. The real, hard evidence is mainly to do with what is, almost euphemistically, known as a "faecal microbiota transplant" (basically, eating other people's poop - note: consult your doctor first!).
I recommended something similar to a friend who, while otherwise perfectly healthy, has been struggling with dangerously low bodyweight. The traditional weightlifter's energy drink is simply milk, eggs and honey thrown in a blender. It's actually very nice and you can vary it by changing the ingredients, for example I sometimes make it with malt extract instead of honey, but you could put strawberries or blueberries in it. Really anything that would work as an ice cream flavour should work well, as it's basically a milkshake. I personally find it has a much nicer texture than pre-packaged "protein drinks" which tend to be a bit gritty and artificial-tasting. It's fallen out of favour with weightlifters somewhat in recent years, because of the fact that if you cook eggs, it makes the protein twice as bioavailable as if you eat them raw. However, it's harder to eat 3 hard-boiled eggs than it is to drink 6 raw ones and either way, you get the same amount of protein.
As a starting point I would suggest 2 eggs (I usually have 3 or 4) and one tablespoon of honey topped up with milk to make a pint (measure just under because it will froth up a bit). But you can add more or fewer eggs to taste and for digestibility. You can easily increase the calorie-density by adding some double cream and/or more honey (but I'd recommend not going too mad with what is basically pure sugar, even if weight gain is the goal).
Another thing you can do is to add egg whites instead of or as well as whole egg(s), which gives you a higher protein:fat ratio and may taste "lighter". However, in that case it's a good idea to add a drop or two of biotin (vitamin B7), because egg whites contain an antinutrient called avidin that blocks biotin absorption. In the case of whole eggs, this is balanced by the extra biotin present in the yolk, but eating too much raw egg white for weeks on end can lead to something known as “egg white injury” (yes, that's the real name) which is basically biotin deficiency. It's called that because people started getting it before biotin was discovered. The cause was figured out later. As a guide, a yolk contains about 20mcg of biotin, so that's what you need to make up if you have raw whites (35g of whites is approximately one egg).
Your comments show that you know very little about microbiome research and the benefits of cultivating a healthy microbiome. Furthermore, faecal transplants do not involve 'eating other people's poop' … which if practised could be extremely dangerous / fatal. Professor Tim Spector's presentations in above mentioned YouTube have ample evidence of the benefits of improving the immune system via cultivation of a healthy microbiome. Many ailments / illnesses are exacerbated by a weak immune system … a weakness which can be reversed by sensible diet and resultant boosted microbiome.
dunk
"Well they would say that ... wouldn't they!"
Isn't a lot of this gluten free diet/food simply another invented marketing ploy and likely of no health benefit, and might even be detrimental, unless of course you genuinely suffer from an intolerance, celiac for instance or other medical condition.
Last edited by Passenger; 8th November 2019 at 11:08.
It should have been obvious that part was a joke. It is nonetheless a somewhat accurate summary of the modern procedure and a completely accurate description of the ancient one. Although, for completeness, I should add that enemas are also available!
(in case it's still not clear that my tone is intended to be humorous I will reiterate my point that there exists good scientific evidence that this procedure does work for a number of serious conditions involving a gut microbiome imbalance)
Celiac disease usually requires a duodenal biopsy and blood tests for a firm diagnosis. Many people who have an intolerance to wheat products likely do not have celiac disease. Cutting out wheat products can help those who think they are wheat intolerant … but any improvement could be psychosomatic. Wheat intolerance can also be caused by poor digestion - which could be due to a compromised microbiome. 'Refined' wheat products are not microbiome friendly … and are part of the vicious circle which compromises gut health … others being e.g. antibiotics, non-wheat refined foods, food additives, and excess sugar … latter particularly in drinks e.g. fruit juices and alcohol .. and sugary breakfast cereals.
I'm always amazed by all the various breakfast cereals stacked on supermarket shelves - most of which are full of refined wheat, rice, corn and sugar … literally hundreds if different brands. Unfortunately we've been brainwashed by media adverts to believe that they are nutritious and healthy and provide a good start to the day. Transiently employed sales and marketing people take much of the blame for this situation … they capitalise on consumers' gullibilities to believe 'advert-speak / jingles'.
dunk
Last edited by sundial; 8th November 2019 at 11:49.
"Well they would say that ... wouldn't they!"
I'm not sure why you insist on replying in that tone even when I put an explicit disclaimer that I am joking.
But even so, you are wrong. Enemas absolutely are one of the main ways the modern procedure is done. Google it if you don't believe me. It's mentioned in nearly every article on the subject, so shouldn't be difficult to find.
Similar to an enema and an enema might be required before the procedure … but FMT is usually administered via endoscopy to specific parts of the large intestine.
https://www.guysandstthomas.nhs.uk/r...ection/fmt.pdf
Can also be administered via suppository … as documented in Professor Tim Spector's YouTube presentations
dunk
Last edited by sundial; 8th November 2019 at 12:13.
"Well they would say that ... wouldn't they!"
A colonoscopy is not a 'fancy enema' … anyone who has experienced a colonoscopy will tell you that … but an enema might be necessary before a colonoscopy.
A colonoscopy is an examination via the rectum of the large intestine and may include minor surgery e.g. to remove bowel polyps.
dunk
EDIT: Some people might find 'tail end / bowel jokes' funny … Those (including TZ UK members) who've undergone life-saving colorectal surgery, might not.
Last edited by sundial; 8th November 2019 at 15:55.
"Well they would say that ... wouldn't they!"
OK, I give up.
Well I apologise if my description of a certain, very specific procedure, in a light-hearted way is something that you or anyone else found offensive. I would however point out that we were only talking about one particular procedure involving an endoscope and not colonoscopy in general.
Last edited by robt; 9th November 2019 at 10:27. Reason: Since we're replying by edits now, better not to bump the thread with more noise
I've been told that you need specialists recommendation (including your medical history) before buying it since there's a lot of crap on this it's hard to choose one. Does a pregnant lady take CBD oil?
Edit: Found this source helpful https://www.getjupiter.com/cbd-beginners-guide/ explained in detail. Clear my doubts after reading this might help to somebody.
Last edited by nathandev; 9th January 2020 at 14:36.
Any update on this thread?
Also, Anyone here tried it to control their epilepsy?
Last edited by nathandev; 9th January 2020 at 03:19. Reason: mistake
Absolutely feel your pain my mum went through a very similar situation around the very same time, she was sent home from the hospital in August this year after feeling poorly with anti- biotics they absolutely missed it, a week after they sent her home we ended up taking her back in because she was unable to eat because of the sickness, after further investigation she was diagnosed with cancer on the right side of the lung, said they couldn't operate because the cancer was very close to a main artery.
After two weeks of watching them do absolutely nothing I decided i'd had enough and took her home she died two weeks later, mum was 83, my Dad is also still alive he's 86, we had the funeral on the Tuesday, he had a stroke on the Sunday and ended up in stroke unit in Aintree, he was there 9 weeks he's lost his speech and has signs of dementia, his sight as worsened also.
He couldn't understand why they wouldn't let him go home and was becoming aggressive with staff, they wanted to put him in a nursing home but i wouldn't wear it and told them i wasn't willing to put him in one until he's at least had the chance to go home because i wasn't going to put him in one on the assumption something might happen ( falls etc ). They were also telling us he wouldn't get any better they had a nurse stationed to him 24 hrs a day, they had alarms on his bed and chairs, and was basically being told to sit in a chair and be a good boy.
It was becoming heartbreaking just to go and see him because he'd be literally begging me to take him home. we began getting phone calls at night could we come in and try to calm him down because he was kicking off most nights trying to go home, i did this 5 nights on the run and would sit with him until he fell asleep 2-3 o clock in the morning, the end story is, i began pushing them for a release date.
Eventually we got one but they're putting more obstacles in the way, needs a bed downstairs but wouldn't provide one etc, alarms in house, told him he could go on the Tuesday, gets there to pick him up i've got his hat and coat ready to take him home OT say's he can't go now because she had to cancel the home care 2 carers 4 times a day. After an argument with her which ended with me accusing her of playing with his head it was arranged for him on the following day to finally go home this time it went ahead.
Anyway he's been home now 4 weeks, he's doing great, and after them telling us he wouldn't get any better, he's up in the morning making himself a cup of tea and a sandwich, his speech is still poor, but getting much better than it was although he get's a bit frustrated at times and misses my mum, he'll be okay he has an appointment for the hospital in 2 months, i doubt very much i'll be able to get him in there for that, but we'll manage, and it's great seeing him smile again.
Last edited by the big fella; 9th January 2020 at 10:25.
It’s an all to common story, the NHS is broken, but, and there is a but, there are some people in the NHS that without them it would be even worse. The nurses that stay late, go the extra mile and actually care about the patients. But for ever one of them there are 5 absolutely shockingly shit ones that quite frankly don’t give a flying fuck about the patient, they’re rough, zero bedside manner and should be even in a hospital let alone caring for patients.
I’ve spent pretty much 5 months in hospitals since the old fella was diagnosed with pancreatic cancer, Leighton hospital, Manchester Royal and Christie’s. In that time Ive learnt a hell of a lot about the systems, processes, how things should be done and shouldn’t. What is normal and what isn’t, etc. You would never spot half of the issues if you didn’t spend this amount of time in a hospital, it drove me insane and frustrated me immensely.
Unfortunately we lost the old fella 2 days before Xmas and was one of the most horrific things me and the misses have ever experienced. He suffered from diagnosis back in August right up until he took his last breath with me and the misses at his bedside, after getting him out of hospital, back home and him lasting only 9 hours !
Funeral tomorrow, and I’m still fkn angry about the whole thing. There were so many failings along the way including a stomach bypass which was carried out to bypass the pancreas, which 4 months later after an endoscope procedure was carried out as he was in so much pain they discovered there was no opening in his stomach or any sign of the bypass? What the fuck is that about? Hence why he suffered every day until he eventually died of a blood clot in his lungs? Not the cancer, a fkn blood clot!
I could rant and rant for pages, but for now I just want to get the funeral done tomorrow, then regroup and stabilise things in the family as it’s torn apart by this whole ordeal.
Pancreatic cancer is one of if not the worst there is, the consultant even said this “of all the cancers this is the one you don’t want”
Awareness of this insidious disease needs increasing for sure.
Thanks to all the guys that helped (you know who you are x)
http://cbdsense.co.uk/
In Holland but very professional just on second order for the wife so personally cannot make any comparisons.
I FEEL LIKE I'M DIAGONALLY PARKED IN A PARALLEL UNIVERSE
Hi All,
I don’t think that this UK based CBD supplier has been mentioned, so it might be worth a look if you are investigating the use of CBD. The Company is:
www.simply-cbd.co.uk/
After quite a bit of research my Wife used their CBD to help with her own ME. They have their own FB page as well with many testimonials and Q&A’s
Cheers
Martin
I am using CBD oil and other marijuana products in my everyday life. I have an anxiety disorder as well as mood swings with depression periods. I've tried a lot of antidepressants and mood stabilizers and they were always not good enough (the side effects like nausea and sleepiness and the general level of withdrawal after I stop taking them was a lot to handle). So I tried CBD (specifically the oil since I didn't want the THC aspect) and it actually worked on me. I usually use special high-quality CBD Vape Cartridges since i switched to an E-cigarette and they are fairly good for the price and they help me keep my moods and anxiety under control without the crazy side-effects so I can stay high-functioning
Last edited by seb345; 10th January 2020 at 12:09.
Been using CBD in various forms for a good few years now. Mainly to aid sleep and for anxiety and depression.
The best stuff I’ve found is from these guys -
https://theoriginalalternativeoffici...v=58e69a293e3d
Hempura also good -
https://www.hempura.co.uk/
CBD Oils now is very popular and very healthy for health, im using them 2 years now, usually I buy only from trusted companies
Hey everyone,
I have been reading through the threads here and felt obligated to share with you all our experience (in a nut shell as it's a longen).
5 years ago someone I love dearly was diagnosed with cancer, unfortunately like many others it had been misdiagnosed for the best part of a year so when it finally was, it had had time to grow.
His prostate was whipped out sharpish which in itself tooks it's toll both phsyically and emotionally as this is a big decision for any man (losing the ability to be fully passionate with your soulmate is difficult to face).
The cancer came back more agressively and he was advised that even with a new form of 'active' radiotherapy we only had max 6 months left to spend time with our amazing person.
It was at this point that one of his surgeons (of all people) advised my uncle to have a look at Prof Raphael Mechoulam & Dr Cristina Sanchez and their approach to treating cancers. We as a family will forever be indebted to that suregeon.
5 years later my Uncle is still with us and just last week at 68 years young just laid a full patio on his own in his back garden and is doing his second parachute jump for charity next week.
Needless to say we have been banging the drum about cannabis oil ever since. We were fortunate enough to meet soo many amazing people when we started our journey in to researching the true benefits of the cannabis plant. People that just wanted to share their stories.
Feel free to message me if anyone is interested in the route we took as it can be a very difficult one, finding trustworthy people who can get the right sort of oi; was the most difficult part.
However, I thank all that is good in this world we found an incredible person who we have used for the last 4 years.
For the record!!!Prior to my uncle being diagnosed with cancer no one in my family used cannabis and we were (I hold my hands up) quite judgemental due to all the demonisation of the plant we had been taught.
HOW WRONG WE ALL WERE!!!!