
Originally Posted by
den77
I had a PM fitted in Dec 2024 after being diagnosed with Sick Sinus Syndrome, basically the electrical pathways throughout my heart were not firing correctly. This manifested as my heart rate not rising during exertion, my heart pausing for gaps of 6-8 seconds, a low resting heart rate of 28 bpm when sleeping, general tiredness and increasingly often breathlessness in everyday life. I was relatively fit and an active endurance triathlon participant, multiple Ironman events completed and a very keen cyclist. I'm told that my heart, blood vessels etc etc are in good condition, it's just the electrical system that is problematic for me. From the start of symptoms to the procedure to fit a biventricular pacemaker took 18 - 24 months, though i didn't really have symptoms during everyday activities until Nov 24 as all my symptoms prior were happening during intense exercise.
Post procedure everything was good and I felt invigorated almost immediately. At the six week post procedure check I was informed that I had atrial flutter (my PM is capable of recording the heart activity in much the same way a Holter ECG can) and since then I have had a few episodes of atrial fibrillation (AFIB) which have meant visits to the A&E department. I have, literally yesterday, started a course of beta blockers to try to calm my heart down as during the AFIB attacks it was recorded @ 220 BPM, not ideal when you are 60 years old and sat in bed. Typically for me much of the time I do not have symptoms of atrial flutter / AFIB, it is the PM, and my smartwatch that informs that I have these rapid, irregular heart rates.
Overall I would say the experience has been a positive one, though that view is tempered by the fact that pre-procedure I had a slow HR and now I have a rapid HR. I just put it down to part of the experience and have my fingers firmly crossed that the beta - blockers and my forthcoming cardiologist appointment will help to resolve the latest issue.
THe advice I would give is to speak, and listen very carefully to your cardiologist, they do not recommend a pacemaker lightly and there are a number of different types of pacemakers that are suited for different types of heart problems. You should be, IMHO, very clear why they are recommending the procedure and what they expect to be the result of receiving the device. Certainly if you are symptom free it doesn't mean you do not have an issue, but you should definitely know what is happening within your heart now, how the PM will affect your heart and what would be the consequences if you do not have the procedure.
Good luck with it all, my PM probably saved my life and I had very few everyday symptoms prior to Nov 24, so even though I am not perfect now I am definitely better than I was the day before the PM was fitted.