Hello all.

Very dear friends have a granddaughter who was sadly born with an extraordinarily rare condition only affecting around six people worldwide.

Aurelia has just turned three, she was born blind and remains with zero vision, it soon became apparent she had other health issues, she cannot feed herself and needs to be fed intravenously, she cannot talk/communicate and cannot walk or crawl; despite all of this she is a very happy little girl. Her parents are doing all they can with her and for her, but their lives are very busy with caring for Aurelia and the care and equipment she needs is extremely extensive, as she grows up she will need specialist housing adaptations and hoists etc.

She is featured in todays Daily Star; i am sure it’s not many of our usual papers, but if you can please buy a copy.

If you can, any donations would be so appreciated by them all, please find the link below:-

https://www.justgiving.com/campaign/...edc473e3c7866e

Below are some photos from today’s paper.

Many thanks in advance all.

Kind regards.

Darren


Sent from my iPhone using Tapatalk