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Thread: Lifesaving support from all TZers - please help

  1. #101
    Happy to help, best wishes to you and your family.

  2. #102
    Master
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    Another thank you to everyone for your support and comments please keep the petition signatures coming.
    Here's an update from today's meeting, no immediate breakthrough but at least both parties are still talking, so fingers crossed still for Orkambi to all CF sufferers!




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  3. #103
    Done

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  4. #104
    Done. All the best.

  5. #105
    Signed. Good luck!!

  6. #106
    Done and Good Luck to you all!!

  7. #107
    Master Maysie's Avatar
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    Signed and forwarded.

    All with the very best wishes.

    Maysie

  8. #108
    Master petethegeek's Avatar
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    Done and bumped back to the top.

  9. #109
    Master
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    Signed. All the best.

  10. #110
    Master
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    Signed.
    All the best for the future.
    You're in my prayers if such things matter to you.

    Dave

  11. #111
    Master
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    Very kind thanks Dave, and everyone else who has signed the petition so far thank you so much. The petition is currently at

    Still have 21,000 votes to get so please keep spreading the good word and the signatures coming. Every signature helps and will make a difference. All the best.


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  12. #112

  13. #113
    Master KavKav's Avatar
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    Signed and good luck!

  14. #114
    Master
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    Daily bump, please add your signature for support. Thank you.
    And a massive thanks to all those who have signed so far and for all your comments, you don't know what it means to all those who are suffering with CF living on borrowed time and who don't really have a voice. 31 is no age at all, assuming they make it that far, many many don't.

  15. #115
    Master
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    Another bump if I may. Can I please ask the good folk of TZ for some more signatures, every single signature of support counts towards ensuring these life saving drugs will soon (hopefully) be made available.
    Massive thank you to everyone for their support so far, please keep rallying around with family and friends.




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  16. #116
    Grand Master Saint-Just's Avatar
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    Shared at my office too. A review with NICE is scheduled in July if I understood correctly
    'Against stupidity, the gods themselves struggle in vain' - Schiller.

  17. #117
    Master
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    Here's the latest thanks for your interest








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  18. #118
    Master
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    Signed

  19. #119
    Have signed too. Wishing you all the best

  20. #120
    Craftsman
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    Done with pleasure.

  21. #121
    Craftsman
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    Done, over 83k now

  22. #122
    Master
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    That's fantastic, heartfelt thanks again to all who have signed and commented here.
    On Sunday 10/03/19 the petition was at 74500 as below.
    So in 5 days the petition has increased by 8500 signatures.
    Please keep the petition support coming we've got to smash 100,000 by spreading the good word.
    Have a good weekend everyone




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  23. #123
    Done


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  24. #124
    Master
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    By way of an update to this thread, today after years of campaigning, lobbying and raising awareness by CF sufferers, their families, the Daily Express in particular Chris Riches and the CF Trust the trilogy of drugs from Vertex have been made available to sufferers in England, following similar news for sufferers in Scotland recently, Wales and Northern Ireland expected to follow shortly.
    I would like to thank everyone who signed the petition posted in this thread to assist in getting this discussed in parliament and ultimately concluded, thank you so much.
    My daughter and the other 10,000 CF sufferers now finally have some real hope for their future. I don't think any of us can fully appreciate what this means to people like my daughter who have had no real hope up until today.
    We are celebrating tonight and this weekend. Life is good and now we all have hope. Give your loved ones a massive cuddle now.






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    Last edited by Cat7; 24th October 2019 at 19:56.

  25. #125
    Grand Master Mr Curta's Avatar
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    Excellent news. Very well done to all involved in achieving this breakthrough.
    M

  26. #126
    Grand Master Wallasey Runner's Avatar
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    Great news indeed, well done to all those who organised this and pushed it all the way to the announcement today. A superb achievement.

  27. #127
    Craftsman
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    Well done, fantastic news

  28. #128
    Master Chinnock's Avatar
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    Fantastic news mate!

  29. #129
    Master ryanb741's Avatar
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    Awesome news!

  30. #130
    Master
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    Thanks guys, it means a lot and I know many of you know all to well from your own similar experiences. All the best.

  31. #131
    Craftsman
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    Just seen the announcement on the news tonight, a fantastic result. Enjoy your celebrations this weekend you all thoroughly deserve it.

  32. #132
    Master
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    Very happy to hear that.

  33. #133
    Well done! Very best of luck!
    It's just a matter of time...

  34. #134
    Master jukeboxs's Avatar
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    Lifesaving support from all TZers - please help

    Very good news! Everyone deserves hope, although sadly a dream for many. We should count ourselves so very lucky.

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