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TZ-UK Fundraiser
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Thread: Lifesaving support from all TZers - please help

  1. #101
    Happy to help, best wishes to you and your family.

  2. #102
    Master
    Join Date
    Aug 2014
    Location
    South East
    Posts
    2,777
    Another thank you to everyone for your support and comments please keep the petition signatures coming.
    Here's an update from today's meeting, no immediate breakthrough but at least both parties are still talking, so fingers crossed still for Orkambi to all CF sufferers!




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  3. #103
    Done

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  4. #104
    Done. All the best.

  5. #105
    Signed. Good luck!!

  6. #106
    Done and Good Luck to you all!!

  7. #107
    Craftsman Maysie's Avatar
    Join Date
    Apr 2012
    Location
    Sunny Suffolk
    Posts
    919
    Signed and forwarded.

    All with the very best wishes.

    Maysie

  8. #108
    Master petethegeek's Avatar
    Join Date
    Jul 2011
    Location
    Worcestershire
    Posts
    1,693
    Done and bumped back to the top.

  9. #109
    Craftsman
    Join Date
    Jan 2012
    Location
    Glos.
    Posts
    994
    Signed. All the best.

  10. #110
    Master
    Join Date
    Aug 2012
    Location
    London
    Posts
    7,220
    Blog Entries
    1
    Signed.
    All the best for the future.
    You're in my prayers if such things matter to you.

    Dave

  11. #111
    Master
    Join Date
    Aug 2014
    Location
    South East
    Posts
    2,777
    Very kind thanks Dave, and everyone else who has signed the petition so far thank you so much. The petition is currently at

    Still have 21,000 votes to get so please keep spreading the good word and the signatures coming. Every signature helps and will make a difference. All the best.


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  12. #112

  13. #113
    Master KavKav's Avatar
    Join Date
    Feb 2008
    Location
    Warwickshire.
    Posts
    6,343
    Blog Entries
    5
    Signed and good luck!

  14. #114
    Master
    Join Date
    Aug 2014
    Location
    South East
    Posts
    2,777
    Daily bump, please add your signature for support. Thank you.
    And a massive thanks to all those who have signed so far and for all your comments, you don't know what it means to all those who are suffering with CF living on borrowed time and who don't really have a voice. 31 is no age at all, assuming they make it that far, many many don't.

  15. #115
    Master
    Join Date
    Aug 2014
    Location
    South East
    Posts
    2,777
    Another bump if I may. Can I please ask the good folk of TZ for some more signatures, every single signature of support counts towards ensuring these life saving drugs will soon (hopefully) be made available.
    Massive thank you to everyone for their support so far, please keep rallying around with family and friends.




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  16. #116
    Grand Master Saint-Just's Avatar
    Join Date
    Apr 2007
    Location
    Ashford, Kent
    Posts
    16,885
    Shared at my office too. A review with NICE is scheduled in July if I understood correctly
    Well, everybody in Casablanca has problems. Yours may work out.

  17. #117
    Master
    Join Date
    Aug 2014
    Location
    South East
    Posts
    2,777
    Here's the latest thanks for your interest








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  18. #118
    Master
    Join Date
    Apr 2009
    Location
    Edinburgh
    Posts
    2,065
    Signed

  19. #119
    Have signed too. Wishing you all the best

  20. #120
    Craftsman
    Join Date
    Jan 2016
    Location
    London
    Posts
    781
    Done with pleasure.

  21. #121
    Craftsman
    Join Date
    Jan 2013
    Location
    Surrey
    Posts
    527
    Done, over 83k now

  22. #122
    Master
    Join Date
    Aug 2014
    Location
    South East
    Posts
    2,777
    That's fantastic, heartfelt thanks again to all who have signed and commented here.
    On Sunday 10/03/19 the petition was at 74500 as below.
    So in 5 days the petition has increased by 8500 signatures.
    Please keep the petition support coming we've got to smash 100,000 by spreading the good word.
    Have a good weekend everyone




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  23. #123
    Done


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